Monday, May 8, 2017

Wait and Trust

Just when you think you have your medications all settled, you realize that you don't.  Friday and Saturday I experienced increasing numbers of events/seizures.  The plan from my neurologist was to increase the dose to 400 as a last resort.  If this doesn't work, we give up on the medicines.

trust pills

After I increase this dose for a week, it's all over.  I really hope it works.  Having a pill that stops these events would be so simple, and it was working for a month.  Or at least it was a perfect coincidence.  My body is the weirdest!

I started with the 400 mg today and I'm a complete zombie.  300 mg made me a little sleepy, but 400 is making me feel like I'm sleep-walking.  You don't want to know how many times I've had to delete and re-type words on this post.  There haven't been any serious side-effects so far.  That's a relief.  The most annoying part about chronic illness is the seemingly constant change of medicines.  It seems like I'm either trying a new drug, increasing or decreasing a dose, getting off a drug, or something!  Your body never gets a break!  If you could just adjust to what you're taking and try to live a normal-ish life, it would be so much better.

My problem is that I have too many chronic illnesses.  I don't want any more.  In fact, some of them can just go away.  If it's not the constant question of my medicines, it's the question of my insurance.  Will I still have it for my next big appointment?  Who knows.  I know that only God knows the answers, and it's so hard to wait.  He wants me to wait and trust.
@2017, copyright Lisa Ehrman


  1. I hate that question of insurance... it's amazing to me what is and is not covered and how much it varies each year.

    1. It doesn't make any sense.... wow!


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