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Wednesday, July 12, 2017

Will I Finally Get A Diagnosis?

As I watch Wimbledon, day after day, I'm nervous and excited about my trip to the hospital.  On the 17th, I'll be checking in to the Epilepsy Monitoring Unit to see if these spells are really seizures.



While I worry about the reality of Epileptic seizures or something they can't diagnose, yet, I also hope that I'll still have insurance to pay for these expensive series of tests by the 17th.  With our government in the process of changing health insurance regulations at any moment, I'm very tense about the options facing me and others like me.

My first EEG was a very short test (45 min) and nothing showed up.  This test was done before I started having these strange spells.  These spells started after I was taken off Topamax, which I was taking for migraines. Since I'm having 3-12 spells per day, the EEG should be able to prove whether or not they are related to the brain or not.

After I arrive at the EMU, I'll have the wires "glued" to my head and then I can just chill there until they get some type of results.  There will be some type of video monitoring.  I'm glad to know that there will be Wi-Fi in my room.  There is no pain involved in this test, but I think my head will probably get itchy.

EEG wires attached


I hope to bring you some pictures and keep you up to date when I get settled in.  Have any of you been involved in an Epilepsy Monitoring Unit?  I would love to hear about your experience.
@2017, copyright Lisa Ehrman

6 comments:

  1. My son had several EEG's. He had febrile seizures as a young child and he had to undergo several tests for that. We had to make sure he was sleep deprived and then when we arrived and they hooked him up to all the wires they had a series of questions for him to answer, activities for him to try and then they wanted him to sleep so they could simulate and monitor him in all sorts of situations. Good luck!!

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    1. It is so scary when our little ones are sick. My child didn't have seizures until he was a teen. I can't imagine how you must have felt having your young child going through that. I'm guessing he outgrew it, because febrile seizures usually work that way? Thank you for your kindness :) I'm just glad I don't have to be sleep-deprived. That wouldn't be fun.

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  2. I'm sorry to hear you are having these spells. I'm glad you are seeking help and not struggling with this alone. You sound like you are staying positive and I hope you will continue to feel hopeful . Thanks for being transparent, a rare quality

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    1. You're very kind, Aletha. Though I dread the test, it will be so good to know one way or the other. I really appreciate the encouragement from you. God bless :)

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  3. I do hope it is good news for you and thank you for sharing your story with us at #BloggersPitStop. I look forward to reading the results.

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    1. Thank you, Sue. I hope so, too. I'll try to share next time at your fun Link-Up :)

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